Tuesday, April 1, 2014

Hearing Assessment Clinic

We took Cecilia to her first Hearing Assessment Clinic at Primary Children's in Salt Lake.  We met with 5 different doctors/interns/visiting fellows and got kind of their consensus opinion on what is happening with Cece.

Cece's audiologist has given her the diagnosis of Auditory Neuropathy Spectrum Disorder (ANSD) but this team was a little more cautious.  They said it very likely could be ANSD, but that they want to wait and see.  They want more testing and more data to make a final decision.  

The good news about the visit is that they determined that Cece's hearing loss is not part of a larger syndrome.  We also decided to not do genetic testing to determine a cause.  Genetic testing is expensive and may not find anything.  And finding a cause may be interesting to know, but it does not change anything now or going forward.

So...next steps:  another ABR in 2 months.  An ophthalmology appointment to double check her eyes.  Continue with early intervention visits.  And as Cece gets older she will be developmentally ready for other tests (like a sound booth) and we will add that in.

Cece was pretty excited to be waiting...

First up was a height and weight check.  With her shirt on, Cece is 10 pounds 4 ounces.

 Ellie and Lynnie love playing at Grandma's house!  They love to play in their rocket ship.  I'm impressed that Grandma keeps storing it for them.

We got home with just enough time to change clothes and head to dance class.  You can't really tell in the picture, but Lynnie is sitting on Ellie's lap.  So sweet!

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